DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Thank You, Bridget!
May 5, 2023
One of our very own patients deserves special recognition for her recent fundraising efforts. Bridget Fullam, an 18 year old living with a Dravet syndrome ...
T-Shirt Fundraiser Benefiting DSF!
April 28, 2023
We invite all members of the Dravet syndrome community – patient families, clinicians, researchers, and industry partners – to join us in supporting our bi-annual ...
Special 2023 Request For Grant Applications: Understanding Broader Genetic Impacts on Phenotype in Dravet Syndrome
April 26, 2023
The Dravet Syndrome Foundation (DSF) is issuing a special request for grant applications proposing research projects that will deepen our understanding of genetic impacts on ...
Patient Families – Help Shape the Future of DSF!
April 21, 2023
At DSF, our mission is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide ...
Caregiver Connect – DSF’s Newest Resource
April 14, 2023
As a caregiver for a child or adult with Dravet syndrome, it is normal to have feelings of anger, depression, and resentment. The emotional role ...
Thank you to our Departing Board President and Welcome to our New Board Member
April 7, 2023
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!