DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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June is Dravet Syndrome Awareness Month!
May 26, 2023
June is Dravet Syndrome Awareness Month in the U.S. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve ...
Day of Dravet Workshops
May 19, 2023
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one ...
Fighting for a Cure through Fundraising
May 12, 2023
As we edge closer to our second Steps Toward a Cure event benefiting the Dravet Syndrome Foundation, I feel led to tell Will’s story and ...
Thank You, Bridget!
May 5, 2023
One of our very own patients deserves special recognition for her recent fundraising efforts. Bridget Fullam, an 18 year old living with a Dravet syndrome ...
T-Shirt Fundraiser Benefiting DSF!
April 28, 2023
We invite all members of the Dravet syndrome community – patient families, clinicians, researchers, and industry partners – to join us in supporting our bi-annual ...
Special 2023 Request For Grant Applications: Understanding Broader Genetic Impacts on Phenotype in Dravet Syndrome
April 26, 2023
The Dravet Syndrome Foundation (DSF) is issuing a special request for grant applications proposing research projects that will deepen our understanding of genetic impacts on ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!