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Nuevo grupo de apoyo en línea de hablar español de DSF en Facebook
“Aumentar la esperanza y cambiar vidas a través de la investigación” Esta es la declaración de la misión de Dravet Syndrome Foundation. Desde nuestra fundación ...
Can Dravet syndrome be cured? Why research is so important.
The first question that is often asked by newly diagnosed families is when there will be a cure for Dravet syndrome. Rare diseases face common ...
Dye it for Dravet is back!
Last year for Dravet Syndrome Awareness Month, we debuted Dye it for Dravet, after DSF Parent Ambassador Jen Kuhn and her hair stylist, Kelsi Morgan ...
June is Dravet Syndrome Awareness Month!
June is Dravet Syndrome Awareness Month in the U.S. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve ...
Day of Dravet Workshops
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one ...
Fighting for a Cure through Fundraising
As we edge closer to our second Steps Toward a Cure event benefiting the Dravet Syndrome Foundation, I feel led to tell Will’s story and ...
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