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Understanding DEI – Diversity
Haga clic aquí para leer en español In January 2023 I had the pleasure of joining the DSF team as the DEI Coordinator. The acronym ...
Marlins for Mason
The First Annual Marlins for Mason Billfish Release Tournament will be held August 4th and 5th in Ocean City, Maryland. Marlins for Mason is a non-profit marlin release tournament ...
Talking About SUDEP
Today’s blog will mostly focus on SUDEP, or Sudden Unexpected Death in EPilepsy. This topic is hard to talk about, but in the rare epilepsy ...
Nuevo grupo de apoyo en línea de hablar español de DSF en Facebook
“Aumentar la esperanza y cambiar vidas a través de la investigación” Esta es la declaración de la misión de Dravet Syndrome Foundation. Desde nuestra fundación ...
Can Dravet syndrome be cured? Why research is so important.
The first question that is often asked by newly diagnosed families is when there will be a cure for Dravet syndrome. Rare diseases face common ...
Dye it for Dravet is back!
Last year for Dravet Syndrome Awareness Month, we debuted Dye it for Dravet, after DSF Parent Ambassador Jen Kuhn and her hair stylist, Kelsi Morgan ...
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