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Increasing clinical trial readiness in Dravet syndrome- Creation and pilot of Dravet-specific clinical outcome measures
Megan Abbott, MD – University of Colorado DenverIncreasing clinical trial readiness in Dravet syndrome- Creation and pilot of Dravet-specific clinical outcome measuresClinician-Researcher Award – $75,000, ...
Generating a shareable clinico-genomic data resource for Dravet syndrome
Ingo Helbig, MD – The Children’s Hospital of PhiladelphiaEthan M. Goldberg, MD, PhD – The Children’s Hospital of PhiladelphiaGenerating a shareable clinico-genomic data resource for ...
DSF Announces 2023 Grant Awards
DSF was established around a central mission of advancing research for Dravet syndrome. A key way in which DSF accomplishes this mission is our yearly ...
SCN1A Horizons – A natural history study of SCN1A-related epilepsies in the United Kingdom
Andreas Brunklaus, MD – University of Glasgow, Royal Hospital for Children, Glasgow, UKSCN1A Horizons – A natural history study of SCN1A-related epilepsies in the United KingdomGrant Support ...
2024 DSF Annual Campaign
As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came ...
What do DSF Family Network Ambassadors and Brand Ambassadors do?
Last week’s blog post was a brief overview about how the Family Network Ambassadors and the Brand Ambassadors function within our organization to help further ...
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