DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Park City Epilepsy Meeting Recap
October 27, 2023
Last week, I had the opportunity to attend the 2023 Park City Epilepsy Meeting and an open house for the NIH/NINDS Epilepsy Therapy Screening Program ...
What is a Turkey Trot and where did it start anyway?
October 20, 2023
In 1896, Buffalo, N.Y. hosted the first-ever Turkey Trot. Only six runners participated in this holiday race, and they ran five miles down dirt roads ...
Welcome our Newest Board Members!
October 13, 2023
Please join us in welcoming our two newest board members, Dr. Gail Farfel and Dr. Bill Kirshner, who will help guide the foundation’s mission Those ...
Welcome our Newest Staff Members!
October 13, 2023
We are excited to add three new staff members to help us better serve our patient community. Join me in welcoming Shannon Cloud, Rich Maxey, ...
#CureDravet T-shirt Campaign
October 6, 2023
Since joining the Dravet Syndrome Foundation staff in late 2022, I have had the privilege of meeting so many families who are all desperate for ...
5th Annual Dance for Dravet – October 6th!
September 29, 2023
The 5th annual Dance for Dravet will take place on Friday, October 6th at Third Degree Glass Factory in St Louis, Missouri. Started in 2019 ...
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