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New DSF Legislative Advocacy Program Kicks Off
As the Dravet syndrome patient community approaches the possibility of ASO and gene therapy advancements, DSF acknowledges the importance of proactive planning to ensure seamless ...
Meet Our New DEI Coordinator, Gloria Rodriguez
I became involved with the Dravet Syndrome Foundation (DSF) to find a sense of control where there was none. Being active and trying to be ...
How is Cora doing? A mom’s musing on what that question is really asking.
“How is Cora doing?” is a typical question we get after our 4 year old daughter has had a seizure. It is a socially acceptable ...
2024 DSF Conference Recap
The 2024 DSF Family & Professional Conference took place June 20th to 22nd at the JW Marriott Minneapolis Mall of America in Minnesota. The meeting ...
2024 DSF Community Awards
At this year’s conference, we honored five individuals whose dedication and active participation in our mission are helping to drive advancements in the field of ...
Remembrance Day – June 15th
Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we ...
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