DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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15 Years of Impact
November 15, 2024
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
Thank you Jamie, for 10 years of dedication!
November 8, 2024
I wanted to take the opportunity to express my heartfelt gratitude to our Finance and Program Director, Jamie Cohen, as she celebrates her 10-year anniversary ...
DSF Legislative Advocacy Update
November 1, 2024
DSF has launched a Legislative Advocacy Program and now is the time for our community to get involved! You may feel like there is nothing ...
Why Our Family Will Dash for Dravet
October 25, 2024
While celebrating with friends and family last year on Christmas Eve, I received news that our daughter, Eden (10 year old Dravet warrior), would lose ...
Sharing Your Caregiver Story
October 18, 2024
DSF has recently launched a Caregiver Stories page on our website to assist families affected by Dravet syndrome in learning from one another’s experiences. By ...
DAF Day is October 10th!
October 4, 2024
We are proud to be participating in the first-ever DAF Day: a new day of giving designed to educate and inspire individuals to donate through ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!