The Accelerating Kids Access to Care Act would make it easier for patients to see providers out of state because it would set up a framework for doctors to more easily accept Medicaid plans from other states. For our community, that means potentially not having to pay out of pocket to see a Dravet specialist in a different state.
This legislation has broad bi-partisan support, but did not make it through the legislative process in 2024. It has now been reintroduced for 2025-2026 session as HR 1509 / S 752.
If you are reaching out to your members of Congress be sure to let them know your loved one’s personal story and the importance of being able to access Dravet specialists out of state.
