DSF Parent Ambassadors

Michele lives in Orange County California with her husband Gareth and her sons Gavin and Aidan. After years searching and traveling across the country for a proper diagnosis, Gavin, now age 25, was diagnosed with Dravet Syndrome at age 8 by Dr Dravet with the help of Mary Anne Menskies , formally of the Idea […]

Brianne Trechter is the mother of Berkley, a six-year-old with Dravet syndrome, and a passionate advocate for families navigating life with severe, complex epilepsy. Through her family’s journey, she has become deeply familiar with the realities of managing unpredictable seizures, coordinating medical care, and balancing the needs of siblings and a busy household—all while holding

Laura is a New Jersey native and mom to two daughters, Leah (9), who lives with Dravet syndrome, and Bailey (4). Together with her husband, Matt, she navigates the daily challenges of raising a medically complex child. Leah was diagnosed with Dravet syndrome at age three, but if you meet her, the first thing you’ll

Dominique lives in the Bay Area of California with her husband Tony, their toddler son Rowan, and their dog Remi. Rowan was diagnosed with Dravet syndrome at six months old and has a de novo SCN1A gene mutation. This revelation turned their world upside down, ushering in an unprecedented wave of fear as the family

Amanda Parchim is a Dravet Syndrome Foundation Family Network Ambassador (Midwest Region) who lives in St. Anne, Illinois, with her husband, Rob, and their two children, McKinley (18) and Mason (15). Amanda graduated from Eastern Illinois University with a bachelor’s degree in Consumer Affairs and a minor in Business Administration. She currently works as an

Christina Osenbach is a parent advocate and digital creator based in North Carolina, where she lives with her husband, Bryan, and their four children. After a ten-year career as a Board Certified Elementary Education teacher, Christina made the intentional decision to step away from the classroom to become a full-time caregiver and advocate for her

Brandee lives in a small rural North Carolina town with her husband, Steven, and two daughters, Kenidee and Addison. Kenidee, her oldest daughter, was diagnosed with Dravet Syndrome at 6 months old; one month after her first seizure. When Brandee received Kenidee’s diagnosis she was overwhelmed, terrified and lost. Since receiving the diagnosis, Brandee and

Brian Wilson – Colorado Brian, a software sales director, originally from New Jersey, has been living in Colorado with his family since 2014. In 2011, Brian and his wife, Meghan, welcomed their second child, Vivian, to the family. Two months later, Vivian had her first seizure, and the journey began. Vivian has an amazing Dravet

Sarah Reyes – Texas Sarah Reyes lives in Allen, Texas with her family. Sarah lives with her husband, Marcus, and her three children. She is passionate about making a difference in the lives of those who are affected by Dravet Syndrome due to her own challenges with having a 9-year-old daughter with Dravet Syndrome  Sarah

Brenda lives in Homewood, IL with her husband Mark and daughter Addison. Addison, now 14, was diagnosed with Dravet Syndrome when she was two and a half years old. Brenda is a stay at home mom who also has a side business that was started after Addison’s diagnosis. Addison’s Tutu Bowtique began in 2013 after