Media Submissions for Dravet Stories Page
We believe that personal stories are powerful tools for raising awareness and fostering a deeper understanding of Dravet syndrome. By sharing the experiences of individuals and families affected by this rare disease, we can put a face to the diagnosis and highlight the realities, challenges, and triumphs that come with it.
We invite you to help us bring these stories to life through photos and your written account that reflects your journey. Whether you’re a parent, sibling, caregiver, or friend, your perspective matters – and your voice can inspire others, educate the public, and drive support for our community.
If you’re interested in sharing your loved one’s story, please fill out the form below and upload your hi-res photo file in jpg or png format. If someone other than the patient’s legal guardian is submitting a story, parental or legal guardian approval is required prior to submission.
Thank you for helping us shine a light on Dravet syndrome – one story at a time.
You can see examples of Dravet Stories on our website here.
Questions on whether your photos are hi-res? Please read our guidelines at this link.
The information collected by Dravet Syndrome The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify identity and assist with communication. Questions or concerns can be directed to our team.