Media Submissions for Dravet Stories Page
We believe that personal stories are powerful tools for raising awareness and fostering a deeper understanding of Dravet syndrome. By sharing the experiences of individuals and their families affected by this rare disease, we can put a face to the diagnosis and highlight the realities, challenges, and triumphs that come with it.
DSF Family Network members who are interested in sharing their loved one’s story on our Dravet Stories webpage can fill out the form below and upload a hi-res photo file in jpg or png format. If someone other than the patient’s legal guardian is submitting a story, parental or legal guardian approval is required prior to submission.
Thank you for helping us shine a light on Dravet syndrome – one story at a time.
Questions on whether your photo is hi-res? Please read our guidelines at this link.
The information collected by Dravet Syndrome The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify identity and assist with communication. Questions or concerns can be directed to our team.