Media Submissions

If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please complete the form below.

To help spread awareness of Dravet syndrome it is important for DSF to share the patient story through a variety of methods. This includes bringing a face to the disease through photos and videos on our website, social media, brochures and other promotional materials. If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please complete the form below. Any questions on photo and video usage may be directed to patientstories@dravetfoundation.org.

To submit photos or video clips for use on our website, brochures, social media, and/or other promotional materials, please complete the submission form below and upload your hi-res photo files (in jpg or png format) or video clips (not to exceed 2MB). You can also email your photos and videos to patientstories@dravetfoundation.org. You can see examples of Dravet Stories on our website here.

Photo/Media Release

Questions on whether your photos are hi-res? Please read our guidelines at this link.

Your Name(Required)

First Last

Email(Required)

Child's Name(Required)

Photos & Video Clips

Please upload photos in jpg or png format. Video clips should not exceed 2MB. Please try to include your child's last name as part of the file name (i.e., smith_photo_1.jpeg)

Drop files here or

Max. file size: 128 MB.

Tell us about yourself and the Dravet patient in your life

Examples: tell us about your family, where you live, what you like to do, what brings you joy, etc.

When did the patient's seizures begin?

What were the early days of the disease like for the patient and family? What led to a diagnosis?

What is your hope for the future your loved one? For the Dravet community?

What advice do you have for newly diagnosed Dravet families?

Were you the recipient of a Patient Assistance Grant?

If so, please share how this grant has helped the Dravet patient in your life.

Signature(Required)

Media Submission Permission & Release: By submitting my photo(s), video(s), or other media to Dravet Syndrome Foundation (DSF), I grant permission to DSF and its agents, volunteers, or employees to use, reproduce, and publish these materials—whether they feature me, my child, or any individual for whom I am authorized to give consent—for use in DSF’s brochures, newsletters, display boards, social media accounts, websites, publications, and other organizational materials, without notifying me. I understand that DSF may choose not to use my media at this time, but may do so at its discretion in the future. I acknowledge that once my photo(s), video(s), or other media are posted by DSF on its website, social media, or in digital/print publications, they may be viewed, shared, or downloaded by anyone using a computer, phone, or other device. Therefore, I agree to indemnify and hold harmless DSF, its agents, volunteers, and employees from any claims. I waive and release any and all claims against DSF and its contractors or licensees relating to my name, likeness, the submitted media, and their uses or distribution in any form or media, including, without limitation, any rights and claims relating to royalties or compensation, editing, alteration, copyright, distribution, misappropriation, libel, false light, rights of privacy and/or publicity. DSF reserves the right to discontinue use of submitted media at any time without notice. If you wish to request removal of your or your child’s photo(s), video(s), or other media from DSF’s website, publications, or social media, please submit a written request by email to info@dravetfoundation.org. I have read this release and fully understand its contents, meaning, and impact.

The information collected by Dravet Syndrome The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify identity and assist with communication. Questions or concerns can be directed to our team.