DSF is pleased to share information about a new free platform developed by UCB, with input from the Dravet syndrome and Lennox-Gastaut syndrome patient communities:
Developed with caregivers, for caregivers, CareCompass is now available for families and caregivers of individuals with Dravet syndrome. This digital care platform is designed to simplify the caregiving journey and empower families to better manage the long-term care management of their loved one. It simplifies daily caregiving by helping you organize, track, manage, and share care-related information in one place.
Caring for someone with a rare disease like Dravet syndrome can be incredibly challenging. CareCompass offers practical tools to manage those challenges, making it easier to stay on top of your loved one’s care. This tool is here to help you feel more in control as you navigate those daily challenges.
We invite you to explore CareCompass and share your feedback with the developers — your input will help shape the platform to better serve the caregiving community.
For any questions regarding the digital solution or direct feedback, please contact tanja.hellier@ucb.com.
📢CareCompass is free to use and intended for caregivers and care providers of individuals living with Dravet or Lennox-Gastaut syndrome. Users must be 18+ and legal residents of the United States.
