Sarah

Tell us about yourself and the Dravet patient in your life:  Dominic is an inspiring 18-year-old who has faced incredible challenges with unwavering determination. Diagnosed with Dravet Syndrome at age five, he has battled this rare and severe form of epilepsy—characterized by frequent, difficult-to-control seizures and significant developmental delays. Despite these obstacles, Dominic has shown

Tell us about yourself and the Dravet patient in your life. We live in Indianapolis Indiana! Alyssa loves to sing and dance. She loves Taylor Swift. She loves to cheer and participate in Unified Sports. When did the patient’s seizures begin? Alyssa began having seizures at 10 months old. She had a 32 minute seizure

Tell us about yourself and the Dravet patient in your life. Mason is my second of four sons. He is brave, curious, and loving. Him and his siblings share a deep bond, through all the challenges Dravet has brought us. He is mostly non-speaking but communicates with an AAC device. Our family loves to swim,

Tell us about yourself and the Dravet patient in your life. Benton LOVES police, Papa’s Boat, and living and loving life. He loves to go camping and ride on any motorized vehicle. He has the best big brother and even though life is tough we live each day for the small successes. When did the

Sawyer is a spirited, curious, loving and funny young man. He makes us laugh every single day! He loves vacations, spending time with his family and cousins, wrestling his big brother Harrison, and going out to eat. He also loves going to the movies, critters of all kinds, digging for worms and bugs outside, tide