Cheyenne Wolf

When Dravet Syndrome Foundation (DSF) began in 2009, it started with four parents and a bold vision: advance understanding of a little-known disease, create treatments where there were none, and fight for a cure for their children. Their drive didn’t come from institutional power or major medical backing—it came from desperation, hope, and an unwavering […]

DSF has recently launched a Caregiver Stories page on our website to assist families affected by Dravet syndrome in learning from one another’s experiences. By sharing your story, we can broaden our support network and enhance our patient community. Your insights can benefit other families in numerous ways: Community Support: It fosters a sense of

We are proud to be participating in the first-ever DAF Day: a new day of giving designed to educate and inspire individuals to donate through their Donor Advised Funds. What Is a Donor Advised Fund (DAF)? A donor advised fund (DAF) is a charitable savings account that gives you the flexibility to recommend grants to

Dear Friends of Dravet Syndrome Foundation (DSF), In the journey of making a difference in the lives touched by Dravet syndrome, every contribution holds the power to bring about change, hope, and progress. While cash donations are always appreciated and put to good use, there’s a world of giving that goes beyond writing a check