Amanda Nehme-Clicerio brings a blend of professional marketing expertise and lived Dravet caregiver experience to her role as Marketing & Digital Communications Manager at the Dravet Syndrome Foundation (DSF). Based in New Jersey, she has spent nearly a decade in B2B marketing roles, building digital ecosystems, shaping brand stories, and translating complex information into clear, actionable communication.
Amanda earned her BBA in Marketing Communications from Berkeley College, where she focused on the intersection of strategy, storytelling, and audience behavior. She has led marketing efforts in the cosmetics and ingredient distribution industries, most recently as Marketing Manager for a specialty ingredient distributor. In that role, she built an integrated digital presence from the ground up—launching and managing an SEO-informed blog hub, growing the organization’s online audience, and developing sales-enabling materials and campaigns in close partnership with internal teams and external partners. Across roles, she has been known for building practical systems—editorial calendars, templates, and SOPs—that help teams communicate consistently and measure what matters.
Amanda also comes to DSF as a Dravet parent. Her daughter, Charlee, was diagnosed with Dravet syndrome just before her first birthday. Since then, Amanda has navigated medical day programs, therapies, nursing support, complex treatment regimens, and the ongoing vigilance that Dravet requires. She has advocated for her daughter across healthcare, insurance, and education systems, gaining a grounded understanding of how critical clear, timely, and compassionate information is for families.
In her role at DSF, Amanda leads the strategy and implementation of digital marketing and communications across web, email, and social channels. She works closely with staff and partners to align messaging with DSF’s mission, elevate caregiver and community stories, and ensure that every piece of content—whether a social post, newsletter, or campaign—helps move research, awareness, and support forward for those affected by Dravet syndrome.