Media Contact
For media inquires or more information on Dravet syndrome or the Dravet Syndrome Foundation, please contact the organization.
Mary Anne Meskis
CEO
Dravet Syndrome Foundation
PO Box 3026
Cherry Hill, NJ 08034
203.392.1955
maryanne@dravetfoundation.org
To share your child’s photo(s), video(s), and/or story with us, please visit our Media Submissions page or email patientstories@dravetfoundation.org.
Newsroom & Press Releases
September 30, 2025: Record-Breaking 7th Annual Dance for Dravet Raises Over $900,000 in St. Louis for Dravet Syndrome Foundation
September 24, 2025: Dravet Syndrome Foundation Announces 4 New Grant Awards
September 2, 2025: Marlins for Mason event exceeds expectations, bringing in more than $680K for the Dravet Syndrome Foundation
December 18, 2024: Dravet Syndrome Foundation Funds Five New Research Grant Awards totaling $1.4M
November 5, 2024: 6th Annual Dance for Dravet raises over $547,000 to benefit Dravet Syndrome Foundation
August 23, 2024: Dravet Syndrome Foundation Partners with Mason's Movement Foundation
August 21, 2024: 2nd Annual Marlins for Mason raises over $500,000 for Dravet Syndrome Foundation
December 12, 2023: Dravet Syndrome Foundation Announces 2023 Research Grant Awardees
December 1, 2023: Mary Anne Meskis Receives the 2023 Extraordinary Contributions to the Field of Epilepsy Award
October 18, 2023: DSF Welcomes New Board Members
October 11, 2023: 5th annual Dance for Dravet sets new fundraising record
September 5, 2023: Dance for Dravet, benefiting Dravet Syndrome Foundation, scheduled for October 06, 2023
May 19, 2023: Strike Out Dravet benefiting Dravet Syndrome Foundation
April 12th, 2023: Strike Out Dravet benefiting Dravet Syndrome Foundation
Families from the local Dravet syndrome patient community in Boston, Massachusetts, will host Strike Out Dravet on Thursday, May 11, 2023 to benefit the Dravet Syndrome Foundation (DSF) at Kings Dining and Entertainment in Seaport. The event is set to be the premier event on the East Coast, having previously been held in New York as the DSF City Bash.
April 3rd, 2023: Dravet Syndrome Foundation Announces Board Changes
December 12th, 2022: Dravet Syndrome Foundation announces 2022 Research Grant Awardees
October 24th, 2022: Dance for Dravet 2022 St. Louis raises over $460,000 to benefit the Dravet Syndrome Foundation
August 9th, 2022: Dance for Dravet, benefitting the Dravet Syndrome Foundation, scheduled for October 14, 2022
July 13th, 2022: Dravet Syndrome Foundation Releases Voice of the Patient Report
June 23rd, 2022: Dravet Syndrome Foundation Launches New Website
December 18, 2024: Dravet Syndrome Foundation Funds Five New Research Grant Awards totaling $1.4M
November 5, 2024: 6th Annual Dance for Dravet raises over $547,000 to benefit Dravet Syndrome Foundation
August 23, 2024: Dravet Syndrome Foundation Partners with Mason's Movement Foundation
August 21, 2024: 2nd Annual Marlins for Mason raises over $500,000 for Dravet Syndrome Foundation
December 12, 2023: Dravet Syndrome Foundation Announces 2023 Research Grant Awardees
December 1, 2023: Mary Anne Meskis Receives the 2023 Extraordinary Contributions to the Field of Epilepsy Award
October 18, 2023: DSF Welcomes New Board Members
October 11, 2023: 5th annual Dance for Dravet sets new fundraising record
September 5, 2023: Dance for Dravet, benefiting Dravet Syndrome Foundation, scheduled for October 06, 2023
May 19, 2023: Strike Out Dravet benefiting Dravet Syndrome Foundation
April 12th, 2023: Strike Out Dravet benefiting Dravet Syndrome Foundation
Families from the local Dravet syndrome patient community in Boston, Massachusetts, will host Strike Out Dravet on Thursday, May 11, 2023 to benefit the Dravet Syndrome Foundation (DSF) at Kings Dining and Entertainment in Seaport. The event is set to be the premier event on the East Coast, having previously been held in New York as the DSF City Bash.