What began as a simple 109-mile recreational bike ride through the scenic Black Hills has transformed into a mission that’s touching lives around the world — including two children right here in Hoven, South Dakota.
The 3rd Annual Pedal for a Purpose, organized by lifelong childhood friends from Hoven, SD, Maria Weber Hartung, Brittany Rader Zweber, and Kindra Kaup Hartung, brought together two days of pedaling, purpose, and heartfelt connection. This year’s ride supported the Dravet Syndrome Foundation, an organization funding critical research and family support for those affected by the rare and devastating seizure disorder.
Dravet syndrome is a severe, genetic form of epilepsy caused by a mutation in the SCN1A gene. The disorder typically begins in infancy and impacts many areas of development and daily life.
For Hoven residents Jesse and Kindra Hartung, the cause hits especially close to home. Their youngest son, Jhett, began having seizures at just two months old. After numerous hospitalizations and genetic testing, Jhett was diagnosed with Dravet syndrome. He continues to receive specialized care in Rochester, Minnesota, and through the amazing team at Bowdle Healthcare Center in Bowdle, SD.
“Even on the best medications and with the most advanced care, seizure control remains difficult,” said Kindra. “Dravet affects every part of his and our lives, but we continue to hold on to hope.”
That hope is now taking a new form. Jhett recently qualified for a Phase 3 clinical trial for a potential disease-modifying therapy. The study includes both a placebo and treatment group, but regardless of which group Jhett is placed in, he will eventually receive access to the medication once the trial concludes — long before full FDA approval.
“It’s a no-brainer,” said Kindra. “We knew from the start this journey would be hard, but we’re clinging to hope — hope for better seizure control and a better quality of life.”
The Dravet Syndrome Foundation uses funds raised through efforts like Pedal for a Purpose to advance treatments and support affected families worldwide. Together with the help of their amazing family and friends, these women raised $10,950 in September of 2025.
This isn’t the first year the trio has made an impact.
In 2024, Pedal for a Purpose raised $8,354.72 for the Ronald McDonald House in Rochester, helping establish the “Wishing Well” room — a space providing comfort gifts for families staying at the house.
In 2023, the inaugural ride raised $6,552 for the same organization while Kindra and Jesse’s oldest son, Jaxon, was undergoing a stem cell transplant to treat brain cancer. During 2023 while Jaxon received treatment, the Hartung’s spent many of days and nights utilizing the Ronald McDonald House and are forever grateful.
That first year’s effort — sparked by Maria and Brittany’s desire to support their friend during an unimaginably hard time — has now evolved into a lasting annual tradition of hope and purpose.
“We all share a love of fitness, wellness, and the outdoors,” said Kindra. “This weekend each year is about doing what we love, but more importantly, doing it for others.”
As the women crossed their final miles, they were met with encouragement from family, friends, and an entire community that has embraced their mission.
“Thank you to everyone who supported us and cheered us on every mile of the way,” said Kindra. “We love doing this, and the support has been incredible.”
The Pedal for a Purpose ride continues to grow — a symbol of friendship, faith, and determination — proving that even the toughest roads can lead to hope.
