Comprehensive Dravet Syndrome Clinic

Clinic Lead:
Lalit Bansal MD
Pediatric Neurology

To make an appointment:
Lisa LaCore – Call 913-696-8950*
*Families should identify they have a child with Dravet syndrome when they call for an appointment to ensure they are scheduled properly.

Services offered:

• Pediatric neurologist/epileptologist
• Genetic counselor
• Pediatrician
• Cardiologist
• Orthopedics
• Gastroenterologist
• Endocrinologist
• Pulmonologist
• Sleep specialist
• Metabolic specialist
• Developmental or neuro- psychologist
• Dietician
• Keto clinic
• Speech pathologist/therapist
• Occupational therapist
• Physical therapist
• Social work
• Caregiver support services (i.e., monthly support group)
• Pediatric to Adult Transition Support

Our convenient, central location offers an all-in-one solution for families seeking quality, multisystem Dravet Syndrome treatments. All the specialties needed to address Dravet Syndrome’s web of connected conditions are represented, including ones that are traditionally hard to schedule, like sleep medicine and psychiatry. The clinic is designed to reduce the time and travel needed to obtain treatment and provide families with access to new and/or less common medicines and therapies.

Specialty and treatment options at the Comprehensive Dravet Syndrome Clinic:

The Comprehensive Epilepsy Center: Recognized by the National Association of Epilepsy Centers as a Level 4 Center, the highest level in epileptic care, our epilepsy specialists deliver cutting-edge treatments including medication (anti-seizure medications for maintenance and “rescue medications” to stop prolonged seizures) and neurosurgical therapy, such as Vagus Nerve Stimulation (VNS).
Sleep Medicine: Treating the variety of sleep disorders patients with Dravet Syndrome experience, our Sleep Disorders Program is the only pediatric program in the region accredited by the American Academy of Sleep Medicine.
Clinical Genetics: Our geneticists offer state-of-the-art evaluation, diagnosis, treatment, and counseling for the full range of SCN1A disorders.
Pediatric Gastroenterology: Nationally recognized, our experienced gastroenterology team can address common Dravet Syndrome issues, like poor feeding, difficulty swallowing and chewing, and constipation.
Developmental and Behavioral Health: Our psychiatrists provide support for Dravet Syndrome patients with developmental, psychiatric, or psychological concerns, including ADHD, perseveration, behavioral problems, and other challenges.
Nutrition Services: Our dieticians can help develop ketogenic and other relevant dietary interventions for patients with Dravet Syndrome.
Neuropharmacology: Part of our internationally recognized Division of Clinical Pharmacology and Toxicology, our neuropharmacists help Dravet Syndrome patients find the most effective medications for their needs.
Social Work: Our social workers offer comprehensive assessments of the psychological and social factors impacting Dravet Syndrome patients’ progress and provide supportive counseling, trauma response, crisis intervention, and care coordination.