This multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress.
DSF Board members, staff, and community members represented our community at this year’s event on February 24-26 in Washington, D.C. If you’re interested in getting involved in future events like this, please email Shannon.
If you’d like to watch a recording of the advocacy training session from this year, you can watch it on demand at this link. For a recap of the week, check out this blog.
