Together, we make life better for those living with Dravet syndrome.
Throughout our 15-year history, DSF has been dedicated to battling Dravet syndrome and supporting patient families. Click on the images below to see the impact your support has made.
In Research Funding
$
10.6
M+
Research Grants Funded
70
+
Research Roundtables
15
Expert Treatment Guidelines
2
Patient Assistance Grants
$
279
K+
Educational Conferences
6
Active Clincal Trials
8
Genetic-based Therapies in Human Trials
2
FDA Approved Medications
3
Featured Impact Stories
2009 | Alaina’s Story
Alaina is a sweet 19-year-old who lives in Smyrna, GA with her parents, Blaine & Shannon, and her siblings, Brandon and Courtney. She had her ...
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2010 | Elissa’s Story
Elissa—also affectionately known as Lizzie-Lu and Lu-Lu by her team of caregivers—is our second daughter and was perfectly healthy when she was born. In February ...
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2011 | Julia’s Story
Julia is and has always been on her own path… Born 9 days late, she is the light of our lives. Her first seizure was ...
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2012 | Peyton’s Story
Peyton is a sweet, funny, tender hearted 12-year-old who loves Basketball, Taekwondo, playing with his siblings and anything video game related. Peyton has the biggest ...
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2013 | Owen’s Story
Owen is nothing short of tenacious and strong. Born on his due date at the end of October 2013, he was the picture of health ...
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2014 | Hayden’s Story
Hayden Stella Reyes was a healthy 5 pounds 11 ounce little girl born on March 25, 2014. She was just four months old when she ...
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2015 | Breccan’s Story
Breccan was born on October 2nd, 2014. He was a healthy, happy baby boy and developed normally for the first few years of his life. ...
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2016 | Eden’s Story
Eden is full of love, compassion, and kindness. She is a green eyed, 9 year old sweetheart full of love, empathy, and sass. Eden is ...
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2017 | Anna’s Story
Anna was born in September 2017 and diagnosed with Dravet syndrome in May 2018 after suffering from prolonged seizures. She has been to the hospital ...
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2018 | Piper’s Story
I am a married father of a 12-year-old son Owen, and twin 9-year-old girls, Mimi and Piper, who were born on May 20, 2008. Piper ...
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2019 | Wyatt’s Story
Wyatt was born on May 23rd, 2019 with the brightest smile and the biggest blue eyes. He brought his parents the most joy and they ...
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2020 | Asher’s Story
He Hit Us With a Love Bomb When Asher was born in January of 2003, we never expected just how much it would change our ...
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2021 | Sienna’s Story
Sienna was born to be a star. From the minute she entered this world she has captivated everyone around her. Her personality is infectious, and ...
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2022 | Kenidee’s Story
Kenidee’s Dravet syndrome story began when she was just five months old. What began as a family Christmas celebration turned into a hospital trip, which ...
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2023 | Mila’s Story
Our lives shattered on July 10th, 2023. That day, our perfectly healthy seven-month-old baby girl was rushed to the hospital for a complex seizure – ...
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2024 | Arjun’s Story
Good morning, everyone. My name is Arjun Pillai and I would like to talk about my own personal journey with SCN1A. I carry a change ...
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