For Researchers
At DSF, we aggressively raise funds to support and fuel research on Dravet syndrome and related epilepsies. Our central goal is to drive scientific breakthroughs that lead to better treatments—and ultimately, a cure.
We are proud to steward these funds carefully and strategically, prioritizing bold ideas with the greatest potential to make an impact. Since 2009, DSF has awarded over $12.4 million across more than 75 research grants, supporting work at every stage of the scientific process—from discovery to clinical application.
We fund:
- High-risk, high-reward discovery science
- Translational research with a clear path to treatment
- Clinical research and trials to bring therapies to patients faster
- Postdoctoral fellowships and clinician-scientist development
Each proposal is evaluated through a rigorous NIH-style review process, judged on scientific quality, innovation, approach, feasibility, and relevance to the Dravet community. Final decisions are made by our Board of Directors, with input from our Scientific Advisory Board, and guided by patient priorities.
A Roadmap for Impact
Our funding strategy is driven by a clear research roadmap—beginning at the molecular level and expanding out to population-level care. From gene and protein targets to clinical trials and patient-centered care, we see every level as essential.
- Solutions at the smallest scale, such as genetic therapies, may bring us closer to a cure.
- Solutions at the broader scale, including symptom management and quality-of-life improvements, are equally critical for individuals living with Dravet syndrome today.
DSF actively supports research across this spectrum—and convenes our Annual Research Roundtable to unite experts in epilepsy, neurology, genetics, and drug development to chart a collaborative course forward.
What Sets DSF Apart
We are uniquely driven by and connected to the Dravet syndrome community. Many members of our staff and Board of Directors are parents or grandparents of affected children. This lived experience fuels our urgency—and shapes our approach to funding, advocacy, and impact.
DSF-funded research is powered by grassroots fundraising and family-driven donations. We hold ourselves accountable to those families and invest in research that reflects both scientific rigor and meaningful patient outcomes.
Explore the Research Landscape
- DSF Research Grant Programs
- DSF Funded Research
- Roadmap to a Cure
- Annual Research Roundtable
- Scientific Advisory Board
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For HCPs
As a clinician or allied health professional, your role is vital in helping individuals with Dravet syndrome and their families navigate a complex, often overwhelming medical journey.
At DSF, we are committed to partnering with providers like you to improve early diagnosis, deliver comprehensive care, and ensure access to the latest clinical research and treatment guidelines.
Dravet syndrome presents uniquely challenging medical, neurological, and developmental needs. Many families encounter delays in diagnosis or face inconsistent care due to a lack of familiarity with this rare and complex condition. DSF aims to change that by equipping health care professionals with the tools, education, and connections necessary to support their patients at every stage of life.
We provide:
- Clinically reviewed guidelines and educational resources
- Access to expert networks and Comprehensive Care Centers
- Opportunities for CME-accredited learning at our Biennial Conference
- Community-informed insights on patient priorities and care experiences
By collaborating with providers across specialties—from pediatricians and neurologists to genetic counselors and surgeons—we help bridge gaps in knowledge and ensure patients receive timely, informed care tailored to their needs.
Explore Resources for HCPs
- Diagnosis and Treatment
- Resources for HCPs
- Surgery for Patients with DS
- Find a Doctor Listing
- Comprehensive Care Centers
- Biennial Conference & Day of Dravet Workshops
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