Share Your Caregiving Journey

Name(Required)

First Last

Email(Required)

Street Address (optional)

Street Address Address Line 2

City/State(Required)

City State / Province / Region

Can you share your journey of receiving your loved one’s diagnosis of Dravet syndrome?

What are some of the biggest challenges you’ve faced as a caregiver?

How has Dravet syndrome impacted you and your family's daily life and routine?

What advice would you give to a new caregiver whose loved one has just received a Dravet syndrome diagnosis?

Are there any specific resources, organizations, or individuals that have been particularly helpful to you?

How do you manage the stress and emotional strain that comes with caregiving?

What moments or achievements have brought you hope and joy despite the challenges?

In what ways has Dravet Syndrome Foundation (DSF) supported you and your family?

What message or piece of wisdom would you like to share with the broader Dravet syndrome community?

Can you describe a moment when you felt particularly supported by DSF and/or the Dravet syndrome community?

Here is a photo of myself:

Max. file size: 128 MB.

And some family photos I'd like to share:

Max. file size: 128 MB.

I acknowledge by submitting this form I hereby grant Dravet Syndrome Foundation (DSF) permission to use my family's story and my/my child's photo of which I have submitted without payment or other considerations to be used in any and all of its publications, including print or web-based publications, website and/or social media channels without notifying me. The DSF reserves the right to choose when and if to utilize a story. I understand that once my image is posted online, the image can be downloaded by any computer user. Therefore, I agree to indemnify and hold harmless the DSF, its agents, volunteers, and employees from any claims. I irrevocably authorize the DSF to copy, edit, enhance, crop, or otherwise alter any photo/video/digital media for use in their materials. I also waive any rights for approval or inspection of any photo/video/digital media, including written or electronic copy, wherein my story or likeness appears.(Required)

I have carefully read and fully understand all the provisions of the release above

Thank you again for sharing your story with Dravet Syndrome Foundation. We couldn't build community, fund research, or make progress without you!

The information collected by Dravet Syndrome The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify identity and assist with communication. Questions or concerns can be directed to our team.