Rare Across America – August 2025

Rare Across America is an advocacy initiative by the EveryLife Foundation that empowers you to meet with your Members of Congress at their local district offices. By sharing your personal story, you can help educate them about the key issues affecting the rare disease community. The program also provides training to ensure you feel confident and prepared for these meetings. Registration will run from August 4-15, 2025.

Learn more and register here!