Our Patient Assistance Grant program (also known as PAG) has been a part of our advocacy efforts at DSF since 2009. We recognize how difficult it can be for families to obtain the necessary equipment to make life more manageable for their child or adult living with Dravet syndrome. Many of these items are not typically covered through private insurance or medicaid, so we are here to try and help bridge that gap!
The PAG program is open to all patients worldwide who are members of the DSF Family Network. There are no income requirements to receive a grant. The PAG program is need-based, not income based. We do our best to work with families and although insurance denials are required for some items, it is not required for every item.
We are currently accepting applications for medical equipment, therapy devices, and educational tools. The program runs Jan 1st through Nov 30th each year, or until allocated funds for that cycle are depleted. Caregivers of patients are eligible to apply for grants of up to $1,500 per year, with a lifetime maximum of $5,000 per patient. Some of the items that have been awarded through the program include:
- Adaptive strollers/wheelchairs/wagons
- Adaptive bikes
- Cooling vests
- Seizure helmets and hats
- Seizure monitors
- Sleep-safe pillows
- Educational devices, such as iPads
- Communication devices
- Tools and supplies associated with the keto diet
The program does not cover medical co-pays, therapy costs, respite assistance or service animals. You can view the full program requirements and access the online application on our website. Applications are available on our website in both English and Spanish
We all know from experience how hard it is to ask for help, even when you really need it. But, DSF is here to help! If you have any questions on the program, please email karen@dravetfoundation.org
