2026 DSF Family & Professional Conference

Mark your calendar for June 25-27, 2026, and join families, researchers, clinicians, and advocates in Orlando, FL, for the DSF Family & Professional Conference – a powerful gathering to share knowledge, build connections, and advance care for those living with Dravet syndrome. The conference takes place at the Renaissance Orlando at SeaWorld in Orlando, Florida.

Our biennial conference brings together families affected by Dravet syndrome, healthcare providers, researchers, and industry partners to foster collaboration, education, and advocacy. The goal is to accelerate research, improve care, and strengthen support for those impacted by the condition. The conference provides a platform to raise awareness, share the latest scientific and clinical advancements, promote equitable access to resources and treatments, and empower the patient community through connection and knowledge-sharing. Over the course of three transformative days, you’ll have the opportunity to connect with fellow families, engage with researchers and clinicians, and gain hope from the latest breakthroughs in care. With a mix of scientific sessions and social events, the conference offers something valuable for everyone!

You can look forward to:

• Educational sessions covering all facets of Dravet syndrome, including treatment, research, clinical trials, and day-to-day care
• A patient activity room designed with comfort and fun in mind’
• Sibling camp to keep brothers and sisters engaged and supported
• Evening socials and dinners to foster new friendships and celebrate our journey

Event details available at: www.dsfconference.org

General questions or sponsorship inquiries? Email us at info@dravetfoundation.org