2026 DSF Conference Scholarships

Every two years, Dravet Syndrome Foundation (DSF) hosts a comprehensive, multi-day educational conference that brings together families living with Dravet syndrome, as well as clinicians, researchers, and industry partners.

The 2026 DSF Family & Professional Conference will welcome over 400 participants for three days of education, connection, and shared experience in Orlando, Florida at the Renaissance Orlando at SeaWorld. Attendees will engage in sessions centered on understanding Dravet syndrome, exploring current and emerging treatment options, improving quality of life, navigating education and services, and connecting with a supportive community that understands the complexities of life with Dravet syndrome.

DSF will provide a limited number of conference scholarships to individuals and families who might otherwise be unable to attend this year’s event. Conference scholarships are intended to reduce financial barriers and increase access to education, support, and community.

Scholarships are awarded based on:

Financial need
Information shared in the application
Available funding

To allow as many families as possible to attend, the DSF may limit awards to one scholarship per family.

Eligibility: Open to families in the U.S. and internationally with a loved one diagnosed with Dravet syndrome who can cover travel costs and expenses not included in the scholarship.

Application Form

Please complete and submit your scholarship application at this link by February 13, 2026. For questions, please contact karen@dravetfoundation.org.

Notification of scholarship awards will be made by February 27, 2026. Scholarships are not guaranteed. Please wait to register for the conference until after receiving notification about your scholarship status.

Scholarship recipients will receive a personalized discount code to use during registration. All scholarship recipients who are awarded hotel accommodations will have their hotel reservations made by DSF.

Scholarship type you are requesting(Required)

VIRTUAL REGISTRATION: fees covered for one individual

IN-PERSON REGISTRATION ONLY: in-person registration fees covered for one individual

INDIVIDUAL SCHOLARSHIP: registration for 1 adult and up to 3 nights hotel accommodations

FAMILY SCHOLARSHIP: registration for up to 2 adults, 2 children, and up to 3 nights hotel accommodations. *Note: Hotel fire regulations only allow up to 4 people per double bed room and up to 3 people for king rooms. There are no exceptions.

Name(Required)

First Last

Address(Required)

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Email(Required)

Phone

This field is hidden when viewing the form

Have you received a scholarship for a previous DSF Conference?(Required)

Yes

I am not sure

Financial Need(Required)

Please let us know a little bit about your financial situation and why the reviewers should consider awarding a scholarship to you.

Personal Essay(Required)

Please let us know your involvement in the Dravet community and why attending the DSF Conference is important to you. This should be written in essay form and be 500 words or less.

Additional Family Members

Please list the first and last names of additional family members who will be coming to the conference with you and will be participating in any evening social events. Include the ages of any children, as well as whether or not they have Dravet syndrome.

Acknowledgement(Required)

By checking this box, I confirm that I understand the terms of this scholarship as indicated at the top of this application and I agree to all conditions set forth.

Yes, I understand the terms

Signature

FAQs

What is and isn't covered by the Family Scholarship?

Coverage includes:

Hotel accommodations for three (3) nights
(One room, Thursday–Saturday, June 25-27, 2026 only)
Conference registration for up to four (4) people listed in your application
(Includes access to conference sessions and meals during official programming)
Free registration for
- Children age 17 and younger
- Individuals diagnosed with Dravet syndrome
Access to all session recordings through December 2026

The scholarship does not cover:

Airfare or ground transportation
Baggage fees
Hotel incidentals (room service, damages, personal charges)
Additional hotel nights outside of the scholarship-covered dates
Meals outside of official conference programming

What is and isn't covered by the Individual Scholarship?

Coverage includes:

Hotel accommodations for three (3) nights
(One room, Thursday–Saturday, June 25-27, 2026 only)
Conference registration for up to one (1) adult listed in your application
(Includes access to conference sessions and meals during official programming)
Access to all session recordings through December 2026

The scholarship does not cover:

Airfare or ground transportation
Baggage fees
Hotel incidentals (room service, damages, personal charges)
Additional hotel nights outside of the scholarship-covered dates
Meals outside of official conference programming

What is and isn't covered by the In Person Registration Scholarship?

Coverage includes:

Conference registration for up to one (1) adult listed in your application
(Includes access to conference sessions and meals during official programming)
Access to all session recordings through December 2026

The scholarship does not cover:

Hotel
Airfare or ground transportation
Baggage fees
Hotel incidentals (room service, damages, personal charges)
Additional hotel nights outside of the scholarship-covered dates
Meals outside of official conference programming

What is covered by the Virtual Registration Scholarship?

Coverage includes:

Virtual attendance for all live sessions
Access to all session recordings through December 2026

How does registration and hotel booking work if I receive a scholarship?

If your scholarship includes lodging, DSF Foundation will reserve your hotel room for Thursday–Saturday, June 25-27, 2026, based on the preferences you indicate in your application. Room types are limited and assigned on a first-come, first-served basis.

Online conference registration opens January 9, 2026, but scholarship applicants should wait to register until they receive their scholarship award letter. Scholarship notifications will be sent no later than February 27, 2026. Once awarded, registration must be completed by March 12, 2026 to confirm acceptance.

If registration or written acceptance is not received by the deadline, the scholarship may be offered to another family on the waitlist.

Can I bring additional guests or stay additional nights?

Yes. Additional guests must register separately and pay the associated registration fees.

Families are responsible for booking and paying for any hotel nights not covered by their scholarship. Details on how to reserve additional nights will be shared after registration.

Who can I contact for questions or if I need help?

For scholarship-related questions, please reply to your scholarship award email or contact: karen@dravetfoundation.org