Brianne Trechter is the mother of Berkley, a six-year-old with Dravet syndrome, and a passionate advocate for families navigating life with severe, complex epilepsy. Through her family’s journey, she has become deeply familiar with the realities of managing unpredictable seizures, coordinating medical care, and balancing the needs of siblings and a busy household—all while holding onto joy, connection, and hope.
Brianne brings a compassionate, honest voice to the Dravet community, sharing not only the challenges but also the resilience and love that define her family’s life. She is especially committed to supporting newly diagnosed families by helping them feel less alone and more empowered to advocate for their children. Brianne works to raise awareness and understanding of Dravet syndrome while uplifting the families who live it every day.