Brandee lives in a small rural North Carolina town with her husband, Steven, and two daughters, Kenidee and Addison. Kenidee, her oldest daughter, was diagnosed with Dravet Syndrome at 6 months old; one month after her first seizure. When Brandee received Kenidee’s diagnosis she was overwhelmed, terrified and lost. Since receiving the diagnosis, Brandee and her husband have completely redesigned their lives. Within months of the diagnosis, their home was listed for sale, sold and they moved. Both, Brandee and her husband, left careers they never thought they’d leave. They made huge decisions all so their daughter, Kenidee (and Addison) could have the best life possible and that means now having a family owned business, a mom who stays home and a life they continuously find themselves thankful for.
Brandee owes a lot to the DSF, because of them she was able to quickly learn how to better care for her child, to navigate traveling out of state for medical care and probably most importantly, have connection to other Dravet parents. Brandee quickly became her daughter’s advocate, voice, and biggest supporter. With that came huge connection with the DSF; traveling to fundraisers hosted by other families, attending local Dravet family gatherings and even hosting their own fundraisers for the DSF. Brandee and her family have hosted several small fundraisers over the last few years but in 2025 they hosted their first gala which raised right at $60,000 for the DSF.
Brandee enjoys sharing her families Dravet story on social media. One of her favorite things to highlight is that there is beauty in the chaos. That even with an extremely heavy diagnosis, like Dravet, there is still a life to be lived. There will be fear, but you can take it with you. Her favorite line is, “do it scared”.
Brandee is a believer, a wife, a mom, a Dravet Syndrome advocate, lover of animals, book nerd, adventure seeker and a person who loves finding beauty in the chaos.