Meredith Bankston

Whether you’re new to the Dravet community or have walked this journey for years, chances are you’ve faced a season of stagnation. You know the feeling — when the things that once stirred your heart have become routine, almost background noise. Maybe it’s a new job that once filled you with excitement but now feels […]

As we gear up for June and Dravet Syndrome Awareness Month, we are excited to announce our annual T-shirt fundraiser!  Every year, supporters rally together to raise awareness and much-needed funds for research into Dravet syndrome. Raising awareness about Dravet syndrome is crucial for improving understanding, fostering community support, and ultimately advancing research efforts that

While celebrating with friends and family last year on Christmas Eve, I received news that our daughter, Eden (10 year old Dravet warrior), would lose access to the medication that was her miracle. I remember the immediate panic attack like it was yesterday. What was this going to mean for our Dravet warrior who at

It’s almost that time of year again. Time for leaves changing, cool breezes, pumpkin everything and you guessed it… DSF Gala and Benefit Evenings. STOP! Don’t tune out yet thinking that this blog post isn’t for you! If you have a desire to help raise funds for research and want to be a part of

In a world where thousands of causes are vying for attention and support, T-shirt fundraisers have emerged as a powerful tool in the realm of fundraising. You can see this by looking in anyone’s closet and if you’re like me, your drawer is filled to the brim with shirts from all different kinds of causes.

Since joining the Dravet Syndrome Foundation staff in late 2022, I have had the privilege of meeting so many families who are all desperate for the same thing: a cure! As a Dravet mom myself, I share in those sentiments. Ever since my daughter, Eden, had her first seizure in 2014 I have been desperate