Researchers, scientists, and other experts must be allowed to continue their life-saving work for Dravet syndrome and other rare diseases

Around 1 in 5 children with my 6-year-old’s rare form of epilepsy die in childhood. I am regularly reminded of this reality when other caretakers in a Dravet Syndrome Foundation online support group post that they lost their precious child.  Just last week, a parent posted about her young daughter dying from a seizure. I can’t help […]

Researchers, scientists, and other experts must be allowed to continue their life-saving work for Dravet syndrome and other rare diseases Read More »