Alliance for Regenerative Medicine
The Alliance for Regenerative Medicine (ARM) is the leading international advocacy organization championing the benefits of engineered cell therapies and genetic medicines for patients, healthcare ...
American Brain Coalition
The American Brain Coalition (ABC) is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, ...
Center for Innovation & Value Research
The Center for Innovation & Value Research is an independent nonprofit research organization working to make sure that all patients have access to the right ...
Clinical Trials Transformation Initiative
At its most fundamental level, the Clinical Trials Transformation Initiative (CTTI) is a group of individuals and organizations that want to improve the quality and ...
Epilepsy Alliance America
Epilepsy Alliance America, founded in 2018, is a growing national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the ...
Epilepsy Leadership Council Member
The Epilepsy Leadership Council (ELC) is made up of individuals representing organizations serving individuals with epilepsy and their families, as well as professionals, and governmental ...
Epilepsy Learning Healthcare System
By connecting epilepsy centers with each other and with community service providers, and including people with epilepsy and their families, the Epilepsy Learning Healthcare System ...
EveryLife Foundation
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven ...
Global Genes – Global Advocacy Alliance Partner
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. They envision a ...
Mason’s Movement Foundation
Mason’s Movement Foundation is a 501(c)3 non-profit, established in 2020 by Matt and Amanda Langford in loving memory of their son, Mason Langford. Their foundation supports ...
National Alliance for Hispanic Health
In 1973 as a result of the need for profound changes in mental health services, the Alliance was incorporated in Los Angeles as the Coalition ...
NASN – Coordinated Support System for Students with Epilepsy (CSSSE) Advisory Group
As a CSSSE Advisory Group member, DSF will make key contributions to the project, including: Review of Needs Assessment results (Navigator and participating school nurses) ...
NeurologyLive Partner – Strategic Alliance Partnership
NeurologyLive®, is a multimedia platform dedicated to providing health care professionals with direct access to expert-driven, practice-changing news and insights in neurology. DSF is a ...
Parent to Parent – Alliance Member
The mission of Parent to Parent is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families ...
Rare Epilepsy Network Partner
The mission of Rare Epilepsy Network (REN) is to work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused ...
Rare Disease Diversity Coalition
The Rare Disease Diversity Coalition is dedicated to addressing the extraordinary challenges faced by historically underrepresented rare disease patients as encompassed by social determinants of ...
Seizure Action Plan Coalition
The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity ...
VuMedi
VuMedi is a private video education platform for doctors. Over 450,000 doctors use VuMedi to improve patient care and grow their practice. DSF is excited ...
