Register for the Family Network
The DSF Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs. Sign up below to be a part of this family community and to stay up to date on new advocacy resources, clinical trials, and educational and fundraising events.
Support Groups
DSF moderates private support groups on Facebook for parents and caregivers of loved ones with Dravet syndrome. These are a great resource for families to ask questions and find support. To join the support groups you will need to fill out the DSF Family Network form.
Newly Diagnosed
The mission of the Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families. We help you do that by addressing the challenges of living with Dravet syndrome through a variety of resources and support options.
Adults with Dravet Syndrome
Characteristics of Dravet syndrome often change in adulthood. A different therapeutic approach may be needed as the patient ages and new or increased care may be required. DSF offers resources and information for families and healthcare professionals and seeks to better define and understand the adult patient experience and needs.
