Southeast Region
Day of Dravet
Saturday, April 12, 2025
Wilderness at the Smokies – Stone Hill Lodge (Sevierville, TN)
Online registration has closed, but if you are interested in attending please email shannon@dravetfoundation.org and we’d love for you to join us!
Event Information and Schedule
Saturday April 12:
Day of Dravet Workshop 9 am – 4 pm
- We will be in the Deep Creek meeting room in Stone Hill Lodge.
- Breakfast and lunch will be provided.
- The agenda/speakers for each event are not set yet, but it will be a mix of presentations about Dravet syndrome (genetics, treatment options, research, current and potential future clinical trials) and how to get involved in the DSF community. Presenters will be DSF staff, medical professionals, industry representatives and other community members. It is a great chance to ask questions about things you may have heard about and wanted to understand more.
- There will also be plenty of time for connecting with other families. It is a great opportunity to meet other caregivers from your area and share local/state resources that are helpful to each other.
Saturday April 12 (Evening):
Dinner/Family Activities
Thanks to a generous sponsorship from UCB, this year we will have an evening activity after the workshop! They will be providing dinner and some fun camp-like activities (called “Camp Small Steps”) for our families at Soaky Mountain Waterpark (sorry, no water activities will be open!) across the street from the conference hotel.
Sunday April 13:
Family Activity (Dollywood)
For anyone that can stay on Sunday, we will be providing tickets for families to visit Dollywood! We are incredibly grateful to UCB for providing our families this opportunity to spend the day together enjoying this very accessible amusement park!
Sibling Camp
- While the workshop is taking place, any siblings aged 4-18 have the opportunity to participate in our sibling camp at no additional charge.
- After breakfast with the family, siblings will gather in the Cades Cove meeting room nearby where they will spend some time getting to know each other and talking about what it is like to be Dravet sibling. Then after lunch they will get to take part in a fun activity together.
- We will have plenty of adult volunteers to make this a special experience for them and keep them safe.
- If you have a sibling that is a teen or adult that would be interested in helping with younger siblings, we would love to have them help!
- Registration info for sibling camp will be sent out to all families that registered for each workshop as the date gets closer.
Hotel Information
We have a room block available at a discounted rate of $179 per night. The rooms have two queen beds and a sleeper sofa and can sleep 4-6 people (additional charges apply for more than 4, see below).
The last day to reserve a room in the block is March 12, or possibly sooner if the block fills up fast. We can try to add more rooms if available, but may not be able to get the same rate, so please reserve your room early.
Rate Details:
- All guest rooms are subject to a $29.95 per night (plus tax) resort fee (per room, not per person).
- All guest rooms are subject to applicable state and local taxes (currently 12.75%) in effect at the time of check in
- A deposit of one night’s room rate will be charged to your credit card upon booking.
- Rooms cancelled between the time of reservation and 72 hours prior to arrival will result in a $30 cancellation fee. Reservations cancellations within 72-hour pay for
the entire room rate for the first night. - Room rates are quoted for up to 4 people in a standard room, each additional person beyond 4 will result in a charge up to $30 per person/per night, plus tax.
- Children 2 and under are free, not counted in the total room count.
- The rates quoted include wrist bands for admission to all water parks on property (the outdoor parks will likely not be open in April).
- Check in is at 4:00 pm, check out at 10:30 am.
- Guests may arrive after 12:00 pm and pre-register to obtain wristbands for the water park even if their room is not ready until check in time. Guests may use the facilities all day on their scheduled departure date.
- Parking is free.
How to make a reservation:
Call 1-877-325-WILD and tell the reservation agent that you are booking a room under the Booking ID # 61038 (Dravet Syndrome Foundation Conference) at Stone Hill Lodge. If you are booking online, enter “DRAVET” into the promo code box.
Hotel Location
Wilderness at the Smokies
Stone Hill Lodge
1424 Old Knoxville Hwy
Sevierville, TN 37876
Frequently Asked Questions
Am I required to attend all of the events?
No! Your registration is for the Day of Dravet workshop on Saturday. The rest of the events are optional. However, you do need to attend the Saturday evening dinner event to receive the tickets for the Sunday activity.
Can my adult/child with Dravet syndrome stay in the room for the workshop?
Yes! This session is very informal, so it’s fine for the entire family to be in the room. We will have some activities in the back area that may help to keep them entertained (and hopefully some volunteers), but it will be your responsibility to determine whether they are creating a distraction for others. We encourage all siblings to participate in Sibling Camp!
Do I have to stay at Wilderness at the Smokies?
No! You are welcome to stay somewhere else, but please be reminded that only hotel guests will be able to enjoy the indoor water park. We know some local families won’t need a hotel at all.
What if we registered, but can no longer attend?
Please email Shannon if you need to cancel your registration.
