DSF Staff
Our team is made up of passionate people committed to driving research, advocating, and providing resources to help families navigate their lives with Dravet syndrome.
Board of Directors
Those who serve on our Board of Directors do so on a voluntary basis, without compensation. We appreciate each of them sharing their gifts and talents with the organization. If you are interested in serving on our Board, please view this page for additional information.
Advisory Boards
DSF’s Medical Advisory Board (MAB) is comprised of recognized authorities in the clinical treatment of Dravet syndrome. DSF’s Scientific Advisory Board (SAB) oversees the organization’s research activities. Their roles are to provide strategic advice and counsel to support the mission of DSF.
DSF Family Network and Brand Ambassadors
One of the facets of DSF is the Family Network and Brand Ambassador programs. Both programs are made up of caregivers of Dravet syndrome patients. These volunteers act as signposts to help guide others to our organization who are looking for support, education, and awareness.